I actually feel like singing today.
Unlike yesterday(which was terrible)I started the day by thinking, what would I do first?
My husband was still asleep and I kinda slipped out of bed and walked into the kitchen. Again, their were dirty glasses where he had gotten up during the night. If your like me, you can't stand to wake up and find dishes. So, i went directly to the sink. As i started to run water, i remembered I hadn't taken my thyroid medicine, so i stopped water and took my Synthroid.
I hadn't felt this good in months, so I thought, I had better get dressed while glasses were soaking.
I went to bedroom ( Where Denver was still snoozing) and gathered what I was wearing for the day and took it quietly to the bathroom. there I started to dress and as I looked into mirror, I remembered back last year.
There I was in hospital (Again) taking infusions of Sol-Medrol and tasting the metal you always do. I still had a nurse that sit with me daily and kept the house clean, but with each drop that came from that Steroid bag hanging from the IV, a touch of hatred came from me.
I hated MS and what it was doing to my body. I was always tired, weak and either stumbling or falling. The weakness and intense pain was why I was lying there getting another infusion. Not sure if it;s having to go to hospital and have infusions during lunch time (ha-ha) or the stupid steroids themselves, but with each steroid visit, my body gained another pound.
I hated being over weight, but my precious husband just said, baby your not fat, your beautiful. I think that is what made the weight easier to adjust to.
I gradually got dressed and put on a touch of blush and eye liner. Just enough makeup that I didn't look pale and sickly.
Back to finish dishes as I tiptoed by Denver and into the kitchen.
Why not put in a load of sheets Denver had stripped from bed yesterday and wash. So, I gathered laundry up and put them in to wash.
Just by what little I had done, My body was getting weaker and a couch looked like a comfy place to crash for a second or two.
After about twenty minutes I was back up. Gatorade and more medicine time.
The Synthroid has labeling to take by itself with glass of water, so now was morning medicine time.
Nitrofur-Macr, Lisinopril, Cymbalta, Omeprazole, Donepezal, Liratadine, Meloxicim, Gabapentin, Wellbutrin.
I hated taking medicine, for some reason I have chocked a lot on just anything I took and after one really big scare, I had learned to crush my medicine.
After six years, you really learn to just put them into your mouth and chew them up.
I turned the television on to keep me company and took cleaner out and cleaned the kitchen cabinets, wiped down the refrigerator and microwave.
Being a person who suffers from OCD, I looked at carpet and noticed it really needed to be vacuumed. I hated vacuuming and hadn't actually done it since having a nurse, but since pitching on of my tantrums and feeling like someone was always watching me, the nurse from home health had been released a month ago. Denver was good about keeping carpet cleaned, but why is it, a woman feels lie she can always clean her house better than a man? Anyway, I knew that dragging the vacuum around would wear me out, I just left it.
I swept kitchen and started to dust when washer shut off.
Damn, another weak spell and back to the couch I went. Grabbing more to drink on the way. I don't understand why, but one moment I'm sweating and feeling like I have stood outside in a rain storm and the next I'm cold.
Having one of those cold times, i got up slowly from couch and got an afghan from chair beside me.
Huddled under my little tent is when my husband walked in. Bless his heart, he came straight to couch and asked, if I was okay.
I have been here now since approximately noon and life with MS is easier when you know you can go online and talk to others about it.
I know your thinking, she stared post out by saying, she feels like singing?
YOUR DARN TOOTING I DO!
I'm not in a bed waiting on someone to feed me like I was six years ago. Nor am I sitting in a wheel chair like I had been three years ago. I actually got out of bed myself and tried to do a little house work.
If I have to stay on this couch ALL day, at least I know I'm winning and this battle isn't over.
Life is precious and it has taken me a long-long time to realize it. Sad, I didn't know just how precious until this disease tried taking hold of me. Well, I guess I could say, it has wrapped it's arms around me, but I be damn if it's going to place a tight hold on me and me not fight back.
MS is a disease that affects the brain and spinal cord, resulting in loss of muscle control, vision, balance, and sensation (such as numbness). With this disease, the nerves of the brain and spinal cord are damaged by our own immune system. Thus, the condition is called an autoimmune disease.
If you know anything about this, you know their is NO CURE!
No one knows what causes the body's immune system to go awry, but some scientists believe that it is a combination of genetics and something in the environment to which the person was exposed to early in life.
God only know's I wish what had happened to me to cause this, but I will never know, not in this life, so I will just fight it.
Please if your reading this and you have MS, don't give up. Don't think life is going to be easy, it's not.
You will feel like your alone in the world, you will have good days and bad days and you may even feel like your going crazy. But FIGHT BACK, don't let this monster win.
I'm going to lay here enjoy the rest of my day and may even sing out loud.
Heck, what am I saying, Youtube is filled with lyrics, so off I go....
Love to all and keep pulling. Who know's, a cure could be tomorrow?
Multiple Sclerosis and Fatigue
Medically speaking, fatigue is not the same thing as tiredness. Tiredness happens to everyone -- it is an expected feeling after certain activities or at the end of the day. Usually you know why you are tired and a good night's sleep solves the problem.
Fatigue is a daily lack of energy; unusual or excessive whole-body tiredness not relieved by sleep. It can be acute (lasting a month or less) or chronic (lasting from one to six months or longer). Fatigue can prevent a person from functioning normally and affects a person's quality of life.
According to the National Multiple Sclerosis Society, 80% of people with MS have fatigue. MS-related fatigue tends to get worse as the day goes on, is often aggravated by heat and humidity, and comes on more easily and suddenly than normal fatigue©2005-2012 WebMD, LLC. All rights reserved.
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