20 Eylül 2012 Perşembe

NEUROLOGIST DRIVE ME CRAZY !

I had an appointment this week for a check up on this disease that is haunting my body.
The heat was already bothering me, due to a heat sensitivity problem I have because of MS.

Finally were there. I manage to get out of the car without falling on my face . My husband comes around the front of car to reach for my hand, as he always does to help with my balance.

Still huffing and puffing from walking a few feet, he say's, honey just a little more to go then we will take the elevator.

Elevator door opens and he hits 2 floor. Door opens and as we get off elevator an elderly woman and her husband are getting into it. As I look, they too are holding hands, and I notice her hands shaking. Like she had tremors. She was kinda stary eyed and looked as thou she had no idea where she was at.

I walked towards the window and couldn't help but wonder if that was what was going to happen to me too.

After being weighed, blood pressure taken I was walked doan a long hall, then down another to then be told to take a right and go to end of hall and take last door on right and have a seat. A seat a I was thinking, hell, I need a bed to lay in....I;m pooped.

The PA comes in and introduces herself and states that she will do initial evaluation on me, but then my neurologist will come in and talk to me.

She checked my reflexes, has me to put my arms out and try to touch my nose, then she takes a pin and touches my cheek. Does this feel better than this, she said as she moved the pin to one side of my face to the other. Then she moved to my arms, "Does this feel different than this"? Yes, I said.
Okay, let me do this...she takes the pin ups up my right leg, then my left leg." Can you tell any difference"?She states. Again, I say, YES.
I have no feeling in my right arm at all, I have little feeling in my right leg, but toes are completely numb. Feet are getting that way.

Then she moves on to, "Have you started any new medications"? No, I say. But, I have been having severe pain in my legs, I have called the after hour number numerous times and was told Dr.Patton would return my call but he didn't. She then say's," well what did you do"?  I laid on couch and cried til I begin to scream, I said. I took 2 sleeping pills and prayed I could go to sleep as my husband rubbed my legs.

Well, she say's...Their isn't much that can be done for MS pain and it does get worse, so maybe your's wasn't as bad as you think. (Okay, I got pissed) I said, Look I'm in pain, I can tolerate pain, I had three children with natural childbirth, I have pulled one of my own teeth andI can handle pain, but this pain is excruciating
and I need help.

Is it muscle pain, bone pain, maybe little spasms, what is it, she say's..

Woman, if I knew I wouldn't be here.....

Well, we feel since your already taking Gabapetin , you can add another and it should help with pain, so take two a day and let us know in six weeks how your doing.

The whole time I'm thinking, My neurologist had already had me on 800mg of Gabapentin 4 times a day and it didn't touch the pain, but this idiot wants me to take two and see what will help.


The neurologist then walks in and say's, she has went over your chart with me and I agree with her. Just come back at end of year and we will see how your doing, if you don't need us before then.

Back on elevator we go, door close and I said, Honey, did we miss something? Like my damn appointment. I swear I think I just had a damn nightmare...

Pain still comes and goes, I still cry and get ill, but I have MS. Remember, it's all in my head. I just need to move around more, walk, or run and stop taking pills and those damn shots, my family say's and I will get better,

The neurologist study it, we live it !! Only we know what we go through...... God help us all!!

Anita


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