You can say my last round didn't go so well. At the end of day one I woke up at 6 AM feeling like superman my powers were restored! I could feel my feet, I could feel my nether regions, life was good.
Day three unfortunately was not so thrilling. I still had the horrible taste in my mouth that one gets with Solumedrol, the taste of metal in your mouth. But I arrived optimistic. After the nurse blew another 2 veins trying to insert the IV we finally got it rolling. The motion sickness kicked in as we were leaving the hospital. Then the migraine hit when we got home and I found myself unwilling to budge from my somewhat comfortable position on the sofa.
Day three was what I considered the tie breaker. Round one was a victory round two I lost to a drug. Day three I had my butt handed to me on a silver platter with the word "LOSER" engraved in the middle. By this point I was sick as a dog and getting worse by the hour. I also managed to gain seven pounds in 3 days which I believe was all fluid and it was all collecting in my face.
Day four almost didn't happen. I refused to go get more. I stomped my feet and whined and screamed until my neuro finally agreed to see me before I went in for more. He takes on look at me, and prescribes sleeping pills and water pills to make me pee before sending me on my merry little way to go get another IV. Another blown vein...this makes 5 in 4 days. What can I say, my body doesn't like needles. I came home and took both the sleeping pills and the water pill. An hour later as i am in zombie mode on the couch I realize this was a bad idea. I am exhausted I want to sleep but now I have to pee every five minutes. I swear to you I would go to the bathroom and by the time I made it back into the living room, I had to go again. This was also the night I wanted to kill my husband for bringing home the wrong kind of sweets. It was a huge fight. Looking back I may have over reacted just a tad. Actually, I did over react!
Day five was the absolute worse. All I wanted to do was lie in bed and cry. Not from pain, but from the metal taste in my mouth, the fact that my body was learning to adjust with the IV steroids and that I was just plain ole miserable. I ached all over. My body hurt, my jaw hurt, my legs hurt when they weren't burning and my hands were numb. I was miserable!
Two days later after all was said and done and I had a total of 6 blown veins and the meds finally started to work their way out of my body I was feeling a little better. My back started spasming that night and I thought it was because I was attempting to sleep in a bed with a new mattress. I had been use to sleeping in a water bed, but my back always hurt, so the new mattress was suppose to help my back and headaches.. But every time I would lay down my back would go berserk. I finally managed to fall asleep only to wake up soaking wet. At first I thought the bed had busted. Then I realized I wasn't in water bed, but mattress and it was sweat. Enough to make my clothes completely soaked. I get up, jump in the shower and change my clothes and my bed stuff. In the five minutes it took to change the bedding out I was soaked again.And now I am shaking. So I call the neuro... who tells me it's withdrawals and I need to sweat it out. Three days later I was somewhat back to normal.
So now you understand how desperate I am to fix this crap. I am about to go in and ask to go through this again, because I cannot find any other options. Which means keeping my daughters and grand children away again until it is all over. This is not a side of me that I want them to see. Plus this time I think I am going to let them leave the IV in, even though that didn't work the last time. We will see.
Oh by the way, I needed to find a way to entertain myself...and others, so I played music and read alot. Of course you can always go over to the player and hit pause if you don't want to hear it or do like I have wanted to do many-many time before, just sling it into the wall. Yes, that would get my mind of tghe pain, metal mouth and possibility of having to do this agagin sometime soon. But, then I would be focused on the mess I had just made and my OCD would of kicked in, I'm damned if I do and I'm damned if I don'r.
Gotta love this damn disease...NOT!!
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